Yes Doris, have been taking Avapro for kidneys prior to going onto the diuretic pills, blood pressure was never an issue of going onto it.  One reader of my blog at another website had said that Avapro for themselves created water retention. Also, another reader told me that I have something in common with race horses now - as Furosemide is given to them to stop them from bleeding during racing (they get disqualified after 3 bleeding sessions). So, I am now a race horse, neighhhhh.

Joking aside tho' - will get urine analysis done in September. Again, our health system here in Canada isn't as efficient as yours for getting tests done - in order to have these done - require prescription from doctor - and to make an appointment is often a long wait - in my case - 6 months to see my endo.  I have done research on protein on urine - and what I came across said that testing urine after 3-6 months is standard. Tests cost money - therefore unless you are at deaths door - one must be patient in this country I live in. Tap, tap .  You know me, much like yourself, everything a doctor says - I take with a grain of salt - do my own research - present it to my medical team when I see them.  It's the safest approach to take today as a patient I believe.  We know our bodies best!

Ankles/legs since starting on the Furosemide are back to feeling normal - just upped my potassium abit - banana (tres expensive right now - but I eat a small one every 2nd day) - and I also get it thru' various fruits/veggies that I eat normally. Also, menopause, which I am starting to enter into - I found out from the GP on Friday will increase BP  - hormones are out of whack - surprise, surprise! 

In the end, never made it to Mount Washington - and yes - it's in New Hampshire. We got up too late on Saturday - and instead went for a cruise through the mountains in the Adirondacks in NY state. Perfect day for a bike ride!

Hi Anna,

I don't want to be a witch but I think you are on target with your self-diagnosis of a form of autonomic neuropathy and gastroparesis. 

You've been a diabetic a long time.  You're A1C only recently starting hovering in the slightly under 6.0 range if I remember correctly.  And I've said many, many times a 6.0 is still substantially higher than a non-diabetic and is prone to cause complications.  I know because I lived those low 6's for years.  I only got rid of my highly acidic stomach and often spastic colon stomach AFTER I got down to 5.1 - still not non-diabetic but a lot closer.  For the record ... my non-diabetic sister has a spastic colon and said giving birth was less painful! 

The water retention is not likely part of it but the rest certainly sounds gastroparesis related.  Were you already taking BP meds?  Did the water retention start before or after taking them?  Or were you taking them and switch?  I started having swollen ankles AFTER I started taking lisinopril (for BP not kidneys).  It doesn't make me happy.  And in your case, because you're already spilling protein please consider having it checked again soon and try to get down closer to 5 (to ward off any further damage).  I don't want you to be a statistic please!

By the way ... did you mean New Hampshire's Mount Washington?  Or do you guys have one too?  Just curious.

Ultimately, please don't accept the answers you got.  Your instincts are right now and you need to know the cause, not just treat the symptoms.  I know.  I sound like a broken record but it's important!  Hope you had a good ride.

Doris