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Diabetic Mastopathy

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Topic Title: Diabetic Mastopathy
Created On: 02/01/2010 04:02 PM

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 03/08/2012 07:47 PM
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FatCatAnna

Posts: 387

Hey Marissa - I wrote about this a few years ago here at Diabetes1.org - here's the link - http://www.diabetes1.org/blogs...ndly_like_to_call_them . I am like you, where in the beginning, I wasn't able to find anyone else with a similar condition. As you'll read in my blog - I was the one that discovered what my condition was in the end - my breast surgeon and technicians couldn't figure out what was up. Like you, it was never cancer - but still - I kept on being slice 'n diced to where the breast was basically nothing (and I wore a form in my bra to look like I had a breast). Again, the blog I wrote hopefully explains it abit better for you.

I have heard from other diabetics - who have similar problems. What we've come to the conclusion - and other medical reports I've come across - is that some diabetic women (Type 1) seem to get this condition when they're blood sugars have run high for awhile. Mine probably did, before the advent of the blood glucose meter - and even when I was using one - I wasn't leading such a good life with diabetes.

I did have reconstruction done as you will read in the blog. No problems since then - I will have forever a nice perky breast on one side and a floppy older breast on the other side <lol>. I know my other breast is having similar problems now - but since I know what it is - and it's not as bad as before - I'm not so worried about it. I still get my mammogram done every year - and keep a close eye on things - but will not undergo any exploratory surgeries like the surgeons did in the beginning - instead - now it's a simple core sample that is taken - less evasive then surgery. Supposably too, from what I have read about our condition - with menopause - these lumps go down in us - so I'm in peri-menopause at the moment (I cry, I laugh, I get hot all in 1 hour - oh joy!).

Hope this helps abit - and let me know if you want to contact any other diabetics - who maybe able to help you feel more at ease - I'll be able to contact them for you - if they don't reply to this post first (I'll be posting this forum discussion on my Facebook page - entitled The Roller Coaster Ride of Diabetes).

Take care and if you are on Facebook - friend me there if you wish!




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Anna from Montreal
*****************
Type 1 since 1967
MDI (NovoRapid and Lantus and/or Levemir)
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 03/08/2012 06:46 PM
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Marissa1978

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A few years ago I went to my doctor when i found a hard lump in my right breat. He referred me to a surgeon who removed the mass. He advised that he thought it was Diabetic Mastitis. Within 6 months I discovered another mass in my right breast. About 6 months ago I found a very large mass in my left breast. I went back to the doctor. This time the doctor did a number of mammograms and sonograms and finally performed a steriotactic breat biospy. Her determination was that i have diabetic induced mastopathy. No one can seem to tell me why this happens. Fortunately all of the 6 core samples she took where beign which is great however I still have no answers. All of the medical professionals all say the same thing. This is rare and we do not know anything. No one within 200 miles of me has even seen a case. Is there some sort of preventive measure? These can at times be quite painful. I have been told that if they continue to grow and all of the breast tissue changes a mastectomy is an option but not one i am wanting to persue. I am young, 34 years old. How uncommon is this? Is it best to leave them in? I cannot seem to find much information on this condition either. Should i be concerned? I do not know anyone who has been diagnosised with this odd condition. Do you where i can find the most helpful information? thank you
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 01/10/2012 12:19 AM
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pear

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Type 1 diabetes results from the body's failure to produce insulin, and presently requires the person to inject insulin.Other forms of diabetes mellitus include congenital diabetes, which is due to genetic defects of insulin secretion, cystic fibrosis-related diabetes, steroid diabetes induced by high doses of glucocorticoids, and several forms of monogenic diabetes.

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 02/07/2010 02:04 PM
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FatCatAnna

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In my 30's I found that my left breast was dipping in, and went to have a mammogram. It turned out that I had a suspicious growth, and I had a lumpdectomy performed the next day. Drainage tubes and all, I went back to work, feeling very happy that all was well (not cancer). Over the next few years, growths kept on reappearing, breast tissue kept on dipping in, lumpectomies were performed over and over again. The growth in my breast that were removed were described as "hard gristle", and with the last removal, it was 5 cm in length. During this time, as noone seemed to know what it was, I came upon the discovery of it being diabetic mastopathy. The breast surgeon had never heard of this, so I loaded his desk up with various information I had gathered. The lumpdectomies that were performed over the years should have not been repeated, sad to say, but left untouched, as like in many women (nonD and D) - once menopause hits, these growths are supposed to stop. I did not have much healthy breast tissue left at this point in time (I was now wearing a prothesis to look "normal") at this point in time and growths were continuing (and very painful - a good sign that this was not cancer - as most cancers are a silent killer), it was decided amongst all the surgeons involved, to perform a subcutaneous mastectomy. This is where the breast is left intact, all the stuff inside is removed. Because of what I considered a rare case they felt it best to avoid further problems down the line and possible cancer (I am supposed to be in medical reports as to the amount of lumps that were removed from my breast <lol>).

I had the mastectomy performed about 5 years ago, it has taken time to adjust to having a "breast" again. I wish the doctors/surgeons had known right from the beginning what I had, but alas, they didn't until I discovered on my own what I had, but at least I have hopefully saved other diabetic women from facing this unnecessary surgery. Now, core samples can be perfomed in the doctors office, without unnecessary slice 'n dice rather then invasive surgery which I had to incur.

I often will tell people that I did suffer from cancer, as I felt all the emotions that they perhaps would go thru', unfortunately I had to deal with the emotions on my own, as no support was available for me, sad to say. I did go thru' some pretty tough emotional times with this, but the main thing is, it was not cancer, and I'm still alive and kicking with my new Dolly Parton (I wrote a blog about it here at Diabetes1.org - http://www.diabetes1.org/blogs/Annas_Blog/The_story_of_my_Dolly_Partons_as_I_fondly_like_to_call_them



-------------------------
Anna from Montreal
*****************
Type 1 since 1967
MDI (NovoRapid and Lantus and/or Levemir)
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 02/01/2010 04:02 PM
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slachapelle

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We recently received a request to open a discussion on diabetic mastopathy, so the following is some information on this rare condition that affects Type I diabetics. Diabetic mastopathy is a condition that is characterized by lumps of fibrous breast tissue. The lumps feel hard to the touch and can appear in one or both breasts. These lumps are not tender. This condition usually arises in pre-menopausal women with Type I diabetes, although it may also be seen in men with Type I diabetes. It is more common in people who have thyroid disorders and damage to the eyes, kidneys and heart. Although the cause is not fully understood, the material may be deposited in the breast because of high blood glucose levels. To confirm this diagnosis and to rule out breast cancer, your doctor may schedule a mammogram or ultrasound of the affected breast. He or she may also schedule a fine needly aspiration of the lump, where cells or fluid from the lump are removed using a thin needle, or a biopsy, where cells are again removed from the tissue. This fluid or tissue will be sent to a lab to make sure the tissue isn't cancerous. Because lumps often reappear after removal, lumps may be allowed to develop and remain in the breast unless they become uncomfortable. The number and size of lumps tends to increase as women progress through menopause. Any breast lump or abnormality is cause for some concer, and should be checked out by your doctor immediately.

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